8:55am

3 Jun
"My help comes from the Lord who made Heaven and Earth.  He will not let your foot be moved.  He who keeps you will not slumber..."  God is constantly working on her behalf.

“My help comes from the Lord who made Heaven and Earth. He will not let your foot be moved. He who keeps you will not slumber…” God is constantly working on her behalf.

IMG_4226 IMG_4230This is some of the team we met with this morning.  Thank you God we are in this place.

We still do not have definite answers

but the search is being narrowed. little by little

They have told us that they are not ruling out liver disease but there are some other real mysteries.

God knows what we don’t know and we trust Him.

He is taking great care of our Lainee.

I slept on and off, waking at 2 feeling panicky.  I had thought: She’s throwing up blood, she’s getting LOTs of blood drawn and for Lainee that’s a big deal because she does not make red blood cells that her body can use. She needs blood!  I found the nurse and told her I feared Lainee’s hemo. would be too low by morning. She said we would wait 6 hours and check again.  I was firm in believing it needed to be checked NOW.   It had dropped from 14 at our admission to cdh Saturday, to 9.9 when I asked for it to be checked, that was at 3:00am.  I told them I wanted her to be transfused, not waiting and they agreed.  God tells a mother’s heart.

Another doctor came to talk to us just now, he is a GI and will do a scope this afternoon after we make sure Lainee can handle it.  He will be specifically looking for an ulcer which would explain lainee’s bleeding.

Much happening.  She’s pretty cranky.  Please pray for answers.

Resting in God’s loving arms and very aware of his presence here with us.

Chris and I know that God has called us to walk with Lainee and we feel so honored to do so, truly a privilege.

Your comments and texts and emails are so encouraging to us, I treasure each one.

thank you for praying for us and the other at home.

I will be updating here as we learn more.

“The Lord is your keeper, the LORD is your shade at your right hand”

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31 Responses to “8:55am”

  1. Dardi June 3, 2013 at 9:37 am #

    “Chris and I know that God has called us to walk with Lainee and we feel so honored to do so, truly a privilege.” I love that you said this…I have told people this countless times about our daughter. It was a year ago that we were in the hospital for a major surgery, & a nurse of all people was like, “Did you KNOW she had this going on?”. I told her basically what you just said. To witness Kemeri’s emotional & physical healing has been an honor. I hope today brings more answers & comfort for your punkin. :o)

  2. susan jahns June 3, 2013 at 9:49 am #

    Chris and Laura,

    Randy and I have not stopped praying. My the Lord continue to be your refuge and very present help in this time of trouble. We know Lainee is safely in the palm of His hand. We love you.
    Randy and Susan Jahns

  3. Amy Klobucher June 3, 2013 at 10:05 am #

    We have not stopped praying since we have heard! Every moment you are with Lainee you are showing her Jesus! I pray you can hold onto that through this time! You are doing the good and right thing! Lainee is so blessed to have parents that love her so much! We pray for the doctor’s wisdom and peace to you all! Love, the Klobuchers

  4. The Millers June 3, 2013 at 10:07 am #

    We are praying for sweet Lainee- my kids love her! Jake prayed for healing and that “her parents would be calm”. Not sure where that came from- but he recognized that its hard for mom and dad to see their child hurting. We will continue to pray! With love from the Millets

  5. Christine June 3, 2013 at 10:13 am #

    You family is in my prayers. Praying for our creator to surround you with love, patience, comfort, strength and wisdom. Prayers for healing for Lainee.

    Joshua 1:9 …be strong and courageous…

  6. Steve King June 3, 2013 at 10:28 am #

    Praying. Interceding for Lainee and the whole Jones family.

  7. Liz Reid June 3, 2013 at 10:43 am #

    Laura and Chris , We will lift your precious daughter in prayer each day and we will pray for each of the siblings and for continued strength for both of you. Your blog is so helpful to know what to pray for specifically. Love , The Reids

  8. Karen and Kaity Pindar June 3, 2013 at 11:10 am #

    Laura, Kaity and I are praying throughout the day for Lainee’s healing. We are praying for the doctors treating her and for you and your family. We willl continue to pray. With love, Karen and Kaity

  9. Margie Fawcett June 3, 2013 at 11:39 am #

    We are praying for Lainee. Josiah Fawcett 1D, WCGS

  10. Allison Dennis June 3, 2013 at 12:10 pm #

    praying for your entire family, for peace and for wisdom in diagnosis

  11. Halkyards June 3, 2013 at 12:11 pm #

    Laura and Chris
    Not a dry eye in the Halkyard household after reading your updates. Strength is what you need from us and it sounds like you’re both holding it together more than us. We are so proud by how you are handling this ‘curve ball’ that The Lord has thrown you. We are VERY positive people and send ALL of our positive energy your way!!! Hang tough with God next to you. Karen, Matt, and Tommy

  12. Helen Stark June 3, 2013 at 12:12 pm #

    Please know Laura and Chris that we are holding precious Lainee Grace, as well as both of you in our hearts and prayers in a special way.

    In His Great and Compassionate Love, Helen and Harry Stark

    Sent from my iPad

  13. Felicita Laoang June 3, 2013 at 12:13 pm #

    We continue to pray for Lainee, the doctors , you, and all of your family.
    What a wonderful journal you have made to share about your dear family!

  14. smurf1154 June 3, 2013 at 12:21 pm #

    you are front and center of my mind and heart….. xoxo, jan (mom to 9 — just got home from china thursday night with our new 9 year old daughter :)

  15. Sherri June 3, 2013 at 12:28 pm #

    Ps 89:8,9 O Lord God of hosts, who is a strong Lord like unto thee? or to thy faithfulness round about thee? Thou rulest the raging of the sea: when the waves thereof arise, thou stillest them.
    This SAME God…he holds sweet Lainee in the palm of His loving hand. And all of you. Praying for answers and for peace in your hearts.
    Sending hugs!

  16. Chrissi Bean June 3, 2013 at 12:31 pm #

    We stand with you and your family in constant prayer. -Chrissi Bean

    Annabella says, “I love you Lainee, my mom and sisters and asked God to heal you, and I know he will. We prayed for wisdom for your doctors and comfort for you. I hope you feel better, and I know God is with you!”

  17. Cheryl Koslosky June 3, 2013 at 12:36 pm #

    Laura and Chris~
    I am Luke’s (from Lainee’s class) mom. Please know that we are praying for your sweet, precious Lainee! May you feel the Lord’s strong arms around you holding you up when you are weak. Lainee is a gift from God and He has His hand upon her little body. We will continue to pray for wisdom (for the doctors) and strength (for you) and healing (for Lainee).
    ~Cheryl Koslosky

  18. Chad Boss June 3, 2013 at 12:37 pm #

    We are praying for Lainee and for your entire family.

  19. Jerry & Linda Seablom June 3, 2013 at 1:37 pm #

    Know that our family is standing in the gap with you expecting a miracle from our awesome God! We are praying for you, Laura and Chris for strength, peace and God’s wisdom in making your decisions and receiving answers quickly, Lainee for a healing,peace and comfort, the physicians and nurses for wisdom, and for your beautiful family! Thank you for keeping us posted and we will continue to storm the heavens! Blessings, The Seablom Family

  20. Carolyn June 3, 2013 at 1:57 pm #

    Praying Laniee will know Deuteronomy 31:9 – “the Lord himself goes before you and will be with you; He will never leave you or forsake you. Do not be afraid; do not be discouraged.”. Praying for your strength and endurance, Laura!

  21. Sharenda Barlar June 3, 2013 at 2:04 pm #

    Dear Lainee,
    We love you and we are praying for you! Claire “I love you and I hope I have a playdate with you soon!”. We are praying for her complete healing and our church had special prayer for you all last evening.

  22. Melissa Allison June 3, 2013 at 2:38 pm #

    I just wanted you to know that we are holding your whole family up to God in prayer. He really is the God of all peace and will be with you and see you through all of this. Praying for rest for Lainee and an answer that brings healing.

  23. Lisa Kortenhoeven June 3, 2013 at 2:47 pm #

    Hi Lainee,
    I missed seeing your smiling face in sunday school yesterday. I love you sweet girl and am praying so hard for you. I can’t wait to see you and give you a big hug! And since you missed our donuts we had in class I will get you a big donut when you feel better!
    Laura, I am praying for your family!

  24. Bonnie Bovey June 3, 2013 at 3:20 pm #

    My family is praying for precious Lainee and all of you! May you feel His arms around you.
    –Bonnie Bovey

    “For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you” (Isaiah 41:13) NIV.

  25. Janet and Roger Burgess June 3, 2013 at 3:38 pm #

    Dear Jones Family,
    We are “approaching the throne of grace with confidence, so that you may receive mercy and find grace to help you in your time of need” (Hebrews 4:16). We are praying that you will be filled with the peace that only God can give. We are praying for the skill and wisdom of the medical team. We know how very much Jesus loves little children, and it is in His capable hands that we place Lainee.
    In His unfailing love,
    Roger and Janet Burgess

  26. nicole June 3, 2013 at 3:39 pm #

    praying for lainee and your family. I think of you all often and admire your faith and strength.

  27. Olivia June 3, 2013 at 4:43 pm #

    Lainee,
    This is Olivia Hamm. I’m praying for you every day and thinking of u a lot. I know you are strong and I hope you feel better! Can’t wait to see u in the fall. Love you!

  28. Cathy Novaria June 3, 2013 at 5:07 pm #

    Laura,
    We are praying without ceasing for you, dear Lainee and all of your family. I am glad you have a strong sense of God’s presence with you in these hours. Your faithful walk brings Him glory! A Mightly Bulwark is our Lord, a fortress never failing. Bob, Cathy, Matthew and Andrea Novaria

  29. Linda June 3, 2013 at 5:47 pm #

    We are praying for all of you, especially Lainee!

    • Janet and Roger Burgess June 4, 2013 at 9:03 am #

      Dear Jones family,
      Thanks for the update. “The Lord will watch over your coming and going both now and forevermore” (Psalm 121:8). We continue to pray.
      In Christ’s unfailing love,
      Roger and Janet

  30. jean Mulvahill June 4, 2013 at 8:52 am #

    Oh dear friend, I am so sorry to read that your precious Lainee is in the hospital and not feeling well.
    God is so awesome- awakening you and giving you a Mommy message. So thankful you were able to get more blood for her.

    Praying, praying, praying for your precious Lainee…

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